Supporting Kidney Patients in Hertfordshire, Bedfordshire, Harlow & Luton
Dialysis patients - we need your help to complete a survey on home dialysis. Research has shown that patients who dialysed at home were at much less risk of contracting Covid so the National Kidney Federation (NKF) and the University of Hertfordshire are carrying out a survey in which all dialysis patients are being encouraged to participate.
The purpose of the survey is to understand why some people choose to dialyse at home, and others don't. There are also questions about how Covid has affected attitudes towards different types of dialysis.
The closing date for the survey is 20 November 2021 which you can complete online by following the link https://www.kidney.org.uk/home-dialysis-survey.
Welcome to LAKPA
The Lister Area Kidney Patients Association (LAKPA) is a small charity dedicated to improving the lives of kidney patients and their families served by the Lister Hospital in Stevenage. Lister Hospital provides a wide range of services to over 900 kidney patients; including pre-dialysis/transplant, dialysis, assessment for living donors and transplantation and post transplantation. It manages dialysis units at the Lister, St Albans, Luton & Dunstable and Harlow Hospitals and at a dialysis unit in Bedford.
Check out the help and support available on our Support page.
We rely on the support of our volunteers
LAKPA is run entirely by volunteers, all of whom have had their life impacted by kidney disease and has developed strong working relationships with clinical and support staff across the renal unit. We all recognise that a kidney diagnosis is life changing and it is important to provide emotional support alongside the medical.
To make sure that our work is effective our priorities this year are:
- Supporting kidney patients and their families during the pandemic.
- Improving the provision of transport for patients to and from their dialysis centres.
- Increasing awareness of the change in law on opt out in England.
- Ensuring that the relocation of the Luton dialysis goes well.
- Generating funds for LAKPA as a result of the impact of the pandemic.
Your donations and how we use them
LAKPA’s whole focus is to support our kidney patients to help improve their lives and the donations we receive are all used for this end. In addition to supporting the renal consultants with equipment that they need, we have helped individual patients who have been affected by the pandemic or by family emergencies. We have provided start up finance for the renal support team in developing services such as the peer support programme and the benefits adviser amongst others. We also know that life needs to have fun in it, so we provide the various units with funds to buy Christmas decorations and, where we can, we support other Christmas festivities.
We also encourage and subsidise summer outings and parties, which we are looking forward to starting up again once the current Covid pandemic subsides. We realise too just how important communication is as kidney disease can feel very isolating, particularly during 2020, where kidney patients have been so vulnerable and so many have missed their friends and family whilst having to shield. We hope that this website and the thrice yearly Newsletter, which is sent free to every member, goes some way to helping you to feel connected. These are just some of the ways in which we use the money you so kindly donate.
We rely on your support!
I will run 50 5k runs before my 50th birthday for LISTER AREA KIDNEY PATIENTS ASSOCIATION because renal patients face daily challenges to just live!
Just one of our valued volunteers!