Supporting Kidney Patients in Hertfordshire, Bedfordshire, Harlow & Luton
Kidney PREM survey - have your say!
UK-wide patient care survey open until 12th December.
The Kidney Patient Reported Experience Measure (PREM) survey is co-ordinated by the UK Kidney Association and Kidney Care UK and has been created by patients and professionals working together to produce a report on how kidney patients experience care across the UK. It’s by listening to you and getting your feedback that we can make change happen and improve services. It does not include your name and has nothing on it that could identify you, so please feel free to answer as honestly as possible.
This year the survey will primarily be collected digitally and there will be an opportunity for you to leave free text comments alongside the full Kidney PREM scale in order to recognise and capture the impact of COVID-19 on people’s experience. It will also give units further information on what they can do in response to their patients’ reported experience.
For those who prefer, or who do not have access to a smart phone, tablet or PC, paper surveys are available on request at your unit.
The survey is open from Monday 1st November to Sunday 12th December and the online Kidney PREM is available in English, Welsh, Urdu and Gujarati.
We encourage everyone over the age of 16 and living with chronic kidney disease (CKD) to take part. This includes those attending a UK hospital renal unit or satellite unit but not yet on renal replacement therapy and anyone who has received a kidney transplant.
The survey aims to:
• Help renal unit teams understand how patients feel about their experience of care
• Show where improvement can be made from a patient perspective
• Provide a national picture of people’s experience of care
Thank you for completing the survey, your views really matter.
Welcome to LAKPA
The Lister Area Kidney Patients Association (LAKPA) is a small charity dedicated to improving the lives of kidney patients and their families served by the Lister Hospital in Stevenage. Lister Hospital provides a wide range of services to over 900 kidney patients; including pre-dialysis/transplant, dialysis, assessment for living donors and transplantation and post transplantation. It manages dialysis units at the Lister, St Albans, Luton & Dunstable and Harlow Hospitals and at a dialysis unit in Bedford.
Check out the help and support available on our Support page.
We rely on the support of our volunteers
LAKPA is run entirely by volunteers, all of whom have had their life impacted by kidney disease and has developed strong working relationships with clinical and support staff across the renal unit. We all recognise that a kidney diagnosis is life changing and it is important to provide emotional support alongside the medical.
To make sure that our work is effective our priorities this year are:
- Supporting kidney patients and their families during the pandemic.
- Improving the provision of transport for patients to and from their dialysis centres.
- Increasing awareness of the change in law on opt out in England.
- Ensuring that the relocation of the Luton dialysis goes well.
- Generating funds for LAKPA as a result of the impact of the pandemic.
Your donations and how we use them
LAKPA’s whole focus is to support our kidney patients to help improve their lives and the donations we receive are all used for this end. In addition to supporting the renal consultants with equipment that they need, we have helped individual patients who have been affected by the pandemic or by family emergencies. We have provided start up finance for the renal support team in developing services such as the peer support programme and the benefits adviser amongst others. We also know that life needs to have fun in it, so we provide the various units with funds to buy Christmas decorations and, where we can, we support other Christmas festivities.
We also encourage and subsidise summer outings and parties, which we are looking forward to starting up again once the current Covid pandemic subsides. We realise too just how important communication is as kidney disease can feel very isolating, particularly during 2020, where kidney patients have been so vulnerable and so many have missed their friends and family whilst having to shield. We hope that this website and the thrice yearly Newsletter, which is sent free to every member, goes some way to helping you to feel connected. These are just some of the ways in which we use the money you so kindly donate.
We rely on your support!
I will run 50 5k runs before my 50th birthday for LISTER AREA KIDNEY PATIENTS ASSOCIATION because renal patients face daily challenges to just live!
Just one of our valued volunteers!